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Life-saving drug scarce, patients left in the lurch

MUMBAI: When 20-year-old Gauri R was wheeled into the ICU of a south Mumbai hospital on Wednesday, it was an emergency that was in the making since July, when a...

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Hunter Syndrome – A rare disease patient Shaurya’s Story

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Stanford uses CRISPR to correct sickle cell, human trials planned

CHICAGO –  Scientists at Stanford University School of Medicine have used the CRISPR gene editing tool to repair the gene that causes sickle cell disease in stem cells from diseased...

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Health Ministru Works On Rare Disease Policy

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For genome services, India must be put on the map

Prajwal Hulluraiah is engrossed in a game on his mother’s mobile phone and wouldn’t look up to talk to you. But that’s where his similarity with any other 11-year-old ends....

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Court Asks Institute to Help Children Suffering from Rare Genetic Disorder

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IGICH to treat patients with rare diseases for free

According to sources, the cost of treatment would run into thirty-five crore rupees annually, which will be footed by the State Government. Bengaluru: Parents and guardians of patients suffering from...

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SmartPeople: Mission possible

Developing medicines for rare diseases requires an entirely different mindset, says John Crowley, chairman and CEO of rare disease company Amicus Therapeutics. “Developing drugs in rare diseases is very different...

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Sahyogi – Care Associate (Care Giver) Training

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Brain-Dead Boy Gives Life To Woman With Rare Heart Disease

A teenager who was declared brain-dead following a road accident gave life to a 27-year-old woman suffering from a rare disease as his heart was successfully transplanted in her after...

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