BENGALURU: Revathi, 11, suffers from Gaucher’s disease, a rare genetic disorder, for which she needs to take life-saving injections every fortnight. However, government departments are passing the buck to release...
For children with rare diseases, every day is a battle against several odds, and their parents have to learn how to deal with their needs and make every effort to...
KARACHI: Health experts on Saturday said that the available treatment options for Lysosomal Storage Disorder (LSD) were beyond the reach of many affected people in the country. They urged the...
The Metabolic Errors and Rare Disease (MERD) organisation of India has urged the government to slash or waive import duties levied on life-saving diets required for children with such problems...
These days, DNA is increasingly being explored as a ‘device’ that has the potential to go beyond its traditional biological role. Dr Yamuna Krishnan, Professor of Chemistry at University of...
With the implementation of Goods and Services Tax (GST), prices of highly-priced life-saving drugs that are used for treating rare diseases have increased 12 percent, resulting in skyrocketing bills, which...
New Delhi [India], Nov 24 : Putting the focus on rare diseases, experts have laid emphasis on ensuring timely treatment for the patients. Although very few people are affected by...
This morning, it was announced that the U.S. Food and Drug Administration (FDA) has approved the gene therapy Luxturna (voretigene neparvovec-rzyl) to treat children and adult patients with confirmed biallelic...
The Rare Genomics (RG) Institute is delighted to announce the launch of the 2018 BeHEARD (Helping Empower and Accelerate Research Discoveries) science challenge (Deadline November 27, 2017), a global competition...
