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GBS FIGHTER FROM INDORE- Jeevan Kaneria

Hello friends, My name is  Jeevan Kaneria and i have been suffering from GBS (Gullian Barry Syndrome) in Indore, Madhya Pradesh India since April 1, 2016. This disease makes the body inactive by demolishing the entire nervous system, it is a very serious and highly expensive disease. Today in 17 states of India, I keep alerting GBS patients about this terrible disease and also teach them to fight against this deadly disease . So far i am in touch with 150 patients and 105 have recovered completely. And this has been made possible only by awakening my inner  will power, so no one should lose courage.I was myself on ventilator for 3 months and was on coma stage for 6 months and Today, I am the brand ambassador and role model for GBS .

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Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.

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