Categories for RARE Albums
DISCOVERING HOPE The day I realised what hope means was the day I realised that I have never known “good health” on a single day in my life, and that...
How Chandra solved the mystery of his missing baby brother! [ Narrated by the parents Geetha and ‘Nary’ Narayanaswamy] We visited the US East Coast about five years ago. We...
Hello friends, My name is Jeevan Kaneria and i have been suffering from GBS (Gullian Barry Syndrome) in Indore, Madhya Pradesh India since April 1, 2016. This disease makes the...
By Vidya C.A. My 9 year old son is a rare disease patient. He has Hunter syndrome. Because of this disease both physical functioning of his body and cognitive skills...
Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.
